Patients and patient organisations

Patients and patient organisations

Responsibility: 

Protect patients’ rights and promote their participation in health care decision-making processes. Lobbying (advocacy) to improve access to specialised treatment and establish programmes for treating rare diseases. Informing patients about available treatment and support options, as well as their rights and options for financing this type of treatment.

Competencies:

Protecting patients’ rights and promoting their participation in health care decision-making processes. Lobbying to improve access to specialised treatment and establish rare disease programmes at medical institutions. Informing patients about the treatment and support available tratments, as well as their rights and options for financing treatment. Protests can be organised or cooperation with international patient and health organisations can be established.